26 February 2012
Last updated at 01:04
Alex Hunt was seven years old when he was diagnosed with adrenoleukodystrophy or ALD
The past 10 years have been a bit of a rollercoaster for Sara Hunt and her family.
In 2001 both of her sons were diagnosed with a rare, inherited disease which attacks the brain and nervous system and can quickly lead to disability and death.
The
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